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Canadian Hemochromatosis Society : ウィキペディア英語版 | Marie Warder
Marie Warder (born Marie van Zyl, April 30, 1927 – October 20, 2014) was a journalist, novelist and activist best known for her activities raising awareness about hemochromatosis.〔Ferguson, Dan. "A writer's return." ''Surrey Leader'' (British Columbia ) 25 May 2008: 9. ''Infotrac Newsstand''. GALE|A227576707. Retrieved 21 November 2012. Also published in ''South Delta Leader'' (British Columbia ). (13 June 2008)〕 Warder founded the Hemochromatosis Society of South Africa,〔(【引用サイトリンク】title=Marie Warder Visits South Africa )〕 and the Canadian Hemochromatosis Society (CHS),〔(【引用サイトリンク】title=History )〕 and was founder and long-time president of the International Association of Hemochromatosis Societies (IAHS), writing the detailing leaflets for them all, which meant that, at that stage, every publication of the Canadian Hemochromatosis Society carried the footnote: "Produced for the International Association of Haemochromatosis Societies." Any emerging or fledgling hemochromatosis society in other parts of the world was free to use her material, with due acknowledgement to the IAHS. Later, Guy Fernau, founder of the Haemochromatosis Society in the United Kingdom, related how, before his own material could be prepared, he only needed to scan the Canadian pamphlet and change the spelling. == Biography ==
Warder was born Marie van Zyl in Ficksburg, South Africa in 1927. She married Tom Warder when she was 19 and he 21, upon his return from active service in World War II, and later moved with him to Canada. Tom was diagnosed with hemochromatosis in 1975, and their daughter was diagnosed with the same disorder in 1979. These two events spurred Warder to become an activist, raising awareness of this disorder within the medical community and the general public.
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